Myeloma UK (1 Viewer)

Glos City said:

Hi All
First time poster here so please bear with me (I'm an old git!)
A short introduction about myself, I'm an old Sky Blue, was even a Bantams supporter as first game was against Newport County in 1961. Left the city many years ago but you don't lose your love for your club. I am a fairly avid reader of this forum and enjoy reading some of the debates (until they descend into playground stuff).
I hope you will all forgive me for using this platform for the main purpose of this post which is to raise some awareness for Myeloma UK. You will probably not be aware but the club have kindly allowed the game on Saturday to be connected to Myeloma UK and there will be people in bright orange t-shirts with collecting tins in and around the stadium.
This is a very selfish post as I am the one with Myeloma. For those who are not aware of it (neither was I until diagnosed 18 months ago) but it is a blood cancer that affects the bone marrow. I have had very similar treatment to Torchamatic (I hope you are still doing well young man) and I too have been through the bone marrow biopsies and had a stem cell transplant in November 2017. However unlike other blood cancers, there is no cure for Myeloma although the treatment can be very effective.
This is a plea really to all members who will be at the game on Saturday to pass the word around as to what Myeloma is and to make a donation. I apologise if some of you feel that this is the wrong place to do this but Myeloma is one of the lesser known cancers and more funding is required to find the causes and to help research better treatments. I realise that this may come across as a bit selfish but my family, who have been brilliant throughout, have had a pretty rough time of it as well and the more awareness and money we can raise will hopefully aid further research.

PUSB

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Glos City said:

Hi All
First time poster here so please bear with me (I'm an old git!)
A short introduction about myself, I'm an old Sky Blue, was even a Bantams supporter as first game was against Newport County in 1961. Left the city many years ago but you don't lose your love for your club. I am a fairly avid reader of this forum and enjoy reading some of the debates (until they descend into playground stuff).
I hope you will all forgive me for using this platform for the main purpose of this post which is to raise some awareness for Myeloma UK. You will probably not be aware but the club have kindly allowed the game on Saturday to be connected to Myeloma UK and there will be people in bright orange t-shirts with collecting tins in and around the stadium.
This is a very selfish post as I am the one with Myeloma. For those who are not aware of it (neither was I until diagnosed 18 months ago) but it is a blood cancer that affects the bone marrow. I have had very similar treatment to Torchamatic (I hope you are still doing well young man) and I too have been through the bone marrow biopsies and had a stem cell transplant in November 2017. However unlike other blood cancers, there is no cure for Myeloma although the treatment can be very effective.
This is a plea really to all members who will be at the game on Saturday to pass the word around as to what Myeloma is and to make a donation. I apologise if some of you feel that this is the wrong place to do this but Myeloma is one of the lesser known cancers and more funding is required to find the causes and to help research better treatments. I realise that this may come across as a bit selfish but my family, who have been brilliant throughout, have had a pretty rough time of it as well and the more awareness and money we can raise will hopefully aid further research.

PUSB

Click to expand...

Glos City said:

Hi All
First time poster here so please bear with me (I'm an old git!)
A short introduction about myself, I'm an old Sky Blue, was even a Bantams supporter as first game was against Newport County in 1961. Left the city many years ago but you don't lose your love for your club. I am a fairly avid reader of this forum and enjoy reading some of the debates (until they descend into playground stuff).
I hope you will all forgive me for using this platform for the main purpose of this post which is to raise some awareness for Myeloma UK. You will probably not be aware but the club have kindly allowed the game on Saturday to be connected to Myeloma UK and there will be people in bright orange t-shirts with collecting tins in and around the stadium.
This is a very selfish post as I am the one with Myeloma. For those who are not aware of it (neither was I until diagnosed 18 months ago) but it is a blood cancer that affects the bone marrow. I have had very similar treatment to Torchamatic (I hope you are still doing well young man) and I too have been through the bone marrow biopsies and had a stem cell transplant in November 2017. However unlike other blood cancers, there is no cure for Myeloma although the treatment can be very effective.
This is a plea really to all members who will be at the game on Saturday to pass the word around as to what Myeloma is and to make a donation. I apologise if some of you feel that this is the wrong place to do this but Myeloma is one of the lesser known cancers and more funding is required to find the causes and to help research better treatments. I realise that this may come across as a bit selfish but my family, who have been brilliant throughout, have had a pretty rough time of it as well and the more awareness and money we can raise will hopefully aid further research.

PUSB

Click to expand...

Glos City said:

Hi All
First time poster here so please bear with me (I'm an old git!)
A short introduction about myself, I'm an old Sky Blue, was even a Bantams supporter as first game was against Newport County in 1961. Left the city many years ago but you don't lose your love for your club. I am a fairly avid reader of this forum and enjoy reading some of the debates (until they descend into playground stuff).
I hope you will all forgive me for using this platform for the main purpose of this post which is to raise some awareness for Myeloma UK. You will probably not be aware but the club have kindly allowed the game on Saturday to be connected to Myeloma UK and there will be people in bright orange t-shirts with collecting tins in and around the stadium.
This is a very selfish post as I am the one with Myeloma. For those who are not aware of it (neither was I until diagnosed 18 months ago) but it is a blood cancer that affects the bone marrow. I have had very similar treatment to Torchamatic (I hope you are still doing well young man) and I too have been through the bone marrow biopsies and had a stem cell transplant in November 2017. However unlike other blood cancers, there is no cure for Myeloma although the treatment can be very effective.
This is a plea really to all members who will be at the game on Saturday to pass the word around as to what Myeloma is and to make a donation. I apologise if some of you feel that this is the wrong place to do this but Myeloma is one of the lesser known cancers and more funding is required to find the causes and to help research better treatments. I realise that this may come across as a bit selfish but my family, who have been brilliant throughout, have had a pretty rough time of it as well and the more awareness and money we can raise will hopefully aid further research.

PUSB

Click to expand...

Glos City said:

Hi All
First time poster here so please bear with me (I'm an old git!)
A short introduction about myself, I'm an old Sky Blue, was even a Bantams supporter as first game was against Newport County in 1961. Left the city many years ago but you don't lose your love for your club. I am a fairly avid reader of this forum and enjoy reading some of the debates (until they descend into playground stuff).
I hope you will all forgive me for using this platform for the main purpose of this post which is to raise some awareness for Myeloma UK. You will probably not be aware but the club have kindly allowed the game on Saturday to be connected to Myeloma UK and there will be people in bright orange t-shirts with collecting tins in and around the stadium.
This is a very selfish post as I am the one with Myeloma. For those who are not aware of it (neither was I until diagnosed 18 months ago) but it is a blood cancer that affects the bone marrow. I have had very similar treatment to Torchamatic (I hope you are still doing well young man) and I too have been through the bone marrow biopsies and had a stem cell transplant in November 2017. However unlike other blood cancers, there is no cure for Myeloma although the treatment can be very effective.
This is a plea really to all members who will be at the game on Saturday to pass the word around as to what Myeloma is and to make a donation. I apologise if some of you feel that this is the wrong place to do this but Myeloma is one of the lesser known cancers and more funding is required to find the causes and to help research better treatments. I realise that this may come across as a bit selfish but my family, who have been brilliant throughout, have had a pretty rough time of it as well and the more awareness and money we can raise will hopefully aid further research.

PUSB

Click to expand...

standupforcity said:

Yes...thank you for raising my awareness, and how nice to get such a positive response on this forum, and I'm glad to be part of it. I too will have some cash on me and very happy to make a contribution. Your explanation really helps, because people waving buckets at you without really knowing what it's for can be a little annoying.

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Glos City said:

Hi All
First time poster here so please bear with me (I'm an old git!)
A short introduction about myself, I'm an old Sky Blue, was even a Bantams supporter as first game was against Newport County in 1961. Left the city many years ago but you don't lose your love for your club. I am a fairly avid reader of this forum and enjoy reading some of the debates (until they descend into playground stuff).
I hope you will all forgive me for using this platform for the main purpose of this post which is to raise some awareness for Myeloma UK. You will probably not be aware but the club have kindly allowed the game on Saturday to be connected to Myeloma UK and there will be people in bright orange t-shirts with collecting tins in and around the stadium.
This is a very selfish post as I am the one with Myeloma. For those who are not aware of it (neither was I until diagnosed 18 months ago) but it is a blood cancer that affects the bone marrow. I have had very similar treatment to Torchamatic (I hope you are still doing well young man) and I too have been through the bone marrow biopsies and had a stem cell transplant in November 2017. However unlike other blood cancers, there is no cure for Myeloma although the treatment can be very effective.
This is a plea really to all members who will be at the game on Saturday to pass the word around as to what Myeloma is and to make a donation. I apologise if some of you feel that this is the wrong place to do this but Myeloma is one of the lesser known cancers and more funding is required to find the causes and to help research better treatments. I realise that this may come across as a bit selfish but my family, who have been brilliant throughout, have had a pretty rough time of it as well and the more awareness and money we can raise will hopefully aid further research.

PUSB

Click to expand...

Glos City said:

Hi All
First time poster here so please bear with me (I'm an old git!)
A short introduction about myself, I'm an old Sky Blue, was even a Bantams supporter as first game was against Newport County in 1961. Left the city many years ago but you don't lose your love for your club. I am a fairly avid reader of this forum and enjoy reading some of the debates (until they descend into playground stuff).
I hope you will all forgive me for using this platform for the main purpose of this post which is to raise some awareness for Myeloma UK. You will probably not be aware but the club have kindly allowed the game on Saturday to be connected to Myeloma UK and there will be people in bright orange t-shirts with collecting tins in and around the stadium.
This is a very selfish post as I am the one with Myeloma. For those who are not aware of it (neither was I until diagnosed 18 months ago) but it is a blood cancer that affects the bone marrow. I have had very similar treatment to Torchamatic (I hope you are still doing well young man) and I too have been through the bone marrow biopsies and had a stem cell transplant in November 2017. However unlike other blood cancers, there is no cure for Myeloma although the treatment can be very effective.
This is a plea really to all members who will be at the game on Saturday to pass the word around as to what Myeloma is and to make a donation. I apologise if some of you feel that this is the wrong place to do this but Myeloma is one of the lesser known cancers and more funding is required to find the causes and to help research better treatments. I realise that this may come across as a bit selfish but my family, who have been brilliant throughout, have had a pretty rough time of it as well and the more awareness and money we can raise will hopefully aid further research.

PUSB

Click to expand...

vincy said:

Hello, hope not to clutter up but was gobsmaked to see this about 2am Thursday (different sleep patterns), and also was looking at Torch’s thread. I was diagnosed with MM at Christmas after suffering with what I thought was a muscle strain back in September.

Treatment started in February and even though doesn’t always feel that way, treatment is going well with good results coming back on the Myelona in my blood.

Still going through Chemo, and finished a course of radio week before last. Was on my arse properly for a few weeks, but have got a new lease of life as of the weekend.

A hell of a lot to take in, made a lot easier with good support network of friends, family, and work colleagues who have been very supportive. It’s a rare disease which normally affects the over 65’s so I am one of the rare ones still in their 40’s, but there are younger people with this. No known cause or cure but a lot of advancements in therapies and can is treatable and manageable. I’m waiting on my treatment in hospital now.

Got a big bag of tablets/syringes from Ward 34 where my new hospital family live at start of my treatment. Two blood tests per week, in fact I am sitting waiting for an MRI scan as referred by Radiotherapy when I started having excruciating pains in back meaning I couldn’t even reach across to turn light on/off, then going for my blood test, unfortunately my MRI is booked for 5pm, but the lovely people say they will see me now.
Inject yourself each day to safeguard from blood cots.

Basically my advice to anyone get yourself checked out and ignore any bullshit housewives tales, pub doctors, and retired nurses advice. This wouldn’t have been picked up on my over 40’s NHS test, but started to take my health a bit more/a lot more seriously after putting this off for 6 years, and got me into a more proactive mindset. Took me a few months to get to a point where they had my diagnosis, but needed to perform biopsies to confirm

First game feel I think I’ve been well enough since I started treatment so will look out for you if I actually make it. What time you there, and where are you collecting?

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Glos City said:

Thank you all so much for your kind thoughts and that you either have or will make a donation. So sorry Vincy to hear that you are also down with this stupid disease. Many people don't realise that they have Multiple Myeloma until quite late. As in your case it often causes back problems and other people have only found out after doing something like breaking a leg only to be hit by this. It is a disease that GP's find hard to diagnose and people don't realise they have it until quite late on. In my case I was troubled by extreme fatigue, I knew I was getting old (63 at the time) but I was usually energetic and pretty fit for my age. Luckily my wife badgered me into going to the GP who was on the ball and arranged certain blood tests. You know you are in trouble when the GP calls and tells you he has made an appointment to see you.
Anyway I am hoping to be at the game tomorrow and I guess I will be somewhere around the corporate entrance as I can't walk too far at the moment. Aim to get there around 12.30. If anyone else is around that area as well and sees an old bloke in a bright orange t-shirt with a collecting tin (probably sitting down) please pop over and have a chat.
Good luck with the rest of your treatment Vincy and let's hope that a good result tomorrow will take our minds off things for a bit.
PUSB

Click to expand...

Glos City said:

Hi All
First time poster here so please bear with me (I'm an old git!)
A short introduction about myself, I'm an old Sky Blue, was even a Bantams supporter as first game was against Newport County in 1961. Left the city many years ago but you don't lose your love for your club. I am a fairly avid reader of this forum and enjoy reading some of the debates (until they descend into playground stuff).
I hope you will all forgive me for using this platform for the main purpose of this post which is to raise some awareness for Myeloma UK. You will probably not be aware but the club have kindly allowed the game on Saturday to be connected to Myeloma UK and there will be people in bright orange t-shirts with collecting tins in and around the stadium.
This is a very selfish post as I am the one with Myeloma. For those who are not aware of it (neither was I until diagnosed 18 months ago) but it is a blood cancer that affects the bone marrow. I have had very similar treatment to Torchamatic (I hope you are still doing well young man) and I too have been through the bone marrow biopsies and had a stem cell transplant in November 2017. However unlike other blood cancers, there is no cure for Myeloma although the treatment can be very effective.
This is a plea really to all members who will be at the game on Saturday to pass the word around as to what Myeloma is and to make a donation. I apologise if some of you feel that this is the wrong place to do this but Myeloma is one of the lesser known cancers and more funding is required to find the causes and to help research better treatments. I realise that this may come across as a bit selfish but my family, who have been brilliant throughout, have had a pretty rough time of it as well and the more awareness and money we can raise will hopefully aid further research.

PUSB

Click to expand...